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Barriers to access and utilization of multiple sclerosis care services in a large cohort of Latin American patients

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dc.contributor.author Carnero Contentti, Edgar
dc.contributor.author Giachello, Susana
dc.contributor.author Correale, Jorge
dc.date.accessioned 2020-11-12T15:13:40Z
dc.date.available 2020-11-12T15:13:40Z
dc.date.issued 2021-01
dc.identifier.citation Carnero Contentti E, Giachello S, Correale J. Barriers to access and utilization of multiple sclerosis care services in a large cohort of Latin American patients. Mult Scler. 2021 Jan;27(1):117-129. doi: 10.1177/1352458519898590. Epub 2020 Jan 21. en_US
dc.identifier.uri https://repositorio.fleni.org.ar/handle/123456789/232
dc.identifier.uri https://doi.org/10.1177/1352458519898590
dc.description.abstract Background: Multiple sclerosis (MS), is an emergent disease in Latin America (LATAM), which raises substantial socioeconomic challenges to a region where most countries remain as economies in development. Objective: To assess barriers to access and utilization of MS care services in a regional cohort survey. Methods: We conducted a cross-sectional study based on a self-reported survey. Patients with MS (PwMS) completed this regional survey in 12 Latin American (LATAM) countries. PwMS were also divided into those with healthcare insurance (including certain local national social security programs) and those without healthcare insurance (treated at public institutions). Results: We surveyed 1469 PwMS and identified significant regional differences in relation to access to complementary tests, rehabilitation services, and prescription of disease-modifying therapies (DMTs). Between 44.4% and 73.5% of PwMS were unemployed and nearly 50% had completed higher education. PwMS receiving care from the private sector reported greater access to imaging, DMTs, and fewer problems obtaining DMTs compared to those treated at public institutions. Multivariate analysis showed that lack of private insurance (OR = 2.21, p < 0.001), longer MS duration (OR = 1.02, p = 0.001), lower level of education (OR = 0.66, p = 0.009), and unemployment (OR = 0.73, p = 0.03) were independently associated with inappropriate delivery of DMTs. Conclusion: These findings suggest barriers to access and utilization of MS care services across LATAM are prevalent. We identified several factors predicting unmet healthcare needs in PwMS. en_US
dc.language.iso eng en_US
dc.publisher Sage en_US
dc.rights info:eu-repo/semantics/openAccess
dc.rights.uri https://creativecommons.org/licenses/by/2.5/ar/
dc.subject Multiple Sclerosis en_US
dc.subject Esclerosis Múltiple en_US
dc.title Barriers to access and utilization of multiple sclerosis care services in a large cohort of Latin American patients en_US
dc.type info:eu-repo/semantics/publishedVersion
dc.type info:eu-repo/semantics/article en_US
dc.description.fil Fil: Correale, Jorge. Fleni. Departamento de Neurología. Servicio de Neuroinmunología y Enfermedades Desmielinizantes; Argentina.
dc.description.fil Fil: Carnero Contentti, Edgar. Hospital Alemán de Buenos Aires. Department of Neuroscience. Neuroimmunology Unit; Argentina.
dc.description.fil Fil: Giachello, Susana. Asociación de Lucha Contra la Esclerosis Múltiple (ALCEM); Argentina.
dc.relation.ispartofVOLUME 27
dc.relation.ispartofNUMBER 1
dc.relation.ispartofPAGINATION 1352458519898590.
dc.relation.ispartofPAGINATION 117-129
dc.relation.ispartofCOUNTRY Inglaterra
dc.relation.ispartofCITY Londres
dc.relation.ispartofTITLE Multiple sclerosis : clinical and laboratory research
dc.relation.ispartofISSN 477-0970
dc.type.snrd info:ar-repo/semantics/artículo es_ES


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