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Research priorities in multiple sclerosis in Latin America: A multi-stakeholder call to action to improve patients care: Research priorities in MS in LATAM

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dc.contributor.author Rojas, Juan Ignacio
dc.contributor.author Carnero Contentti, Edgar
dc.contributor.author Abad, Patricio
dc.contributor.author Aguayo, Adriana
dc.contributor.author Alonso, Ricardo
dc.contributor.author Bauer, Johana
dc.contributor.author Becker, Jefferson
dc.contributor.author Bustos, Andrea K.
dc.contributor.author Carcamo, Claudia A.
dc.contributor.author Carrá, Adriana
dc.contributor.author Correa Díaz, Edgar Patricio
dc.contributor.author Correale, Jorge
dc.contributor.author Cristiano, Edgardo
dc.contributor.author Diaz, Alejandro J.
dc.contributor.author Fernandez Liguori, Nora
dc.contributor.author Flores, José
dc.contributor.author Fruns, Manuel
dc.contributor.author Garcea, Orlando
dc.contributor.author Ysrraelit, María Célica
dc.contributor.author LACTRIMS working group
dc.date.accessioned 2021-10-05T14:53:01Z
dc.date.available 2021-10-05T14:53:01Z
dc.date.issued 2021-05-24
dc.identifier.citation Rojas JI, Carnero Contentti E, Abad P, Aguayo A, Alonso R, Bauer J, Becker J, Bustos AK, Carcamo CA, Carra A, Correa Diaz EP, Correale J, Cristiano E, Diaz AJ, Fernandez Liguori N, Flores J, Fruns M, Garcea O, Giachello SM, Godoy MD, Gracia F, Hamuy VF, Henestroza PR, Navarra JA, Navas C, Patrucco L, Perez Bruno M, Prato AS, Rivera VM, Rosa Martinez AR, Vanotti S, Vazquez M, Vizcarra D, Ysrraelit MC, Alonso Serena M; on behalf research priorities LACTRIMS working group. Research priorities in multiple sclerosis in Latin America: A multi-stakeholder call to action to improve patients care: Research priorities in MS in LATAM. Mult Scler Relat Disord. 2021 Aug;53:103038. doi: 10.1016/j.msard.2021.103038 es_ES
dc.identifier.uri https://doi.org/10.1016/j.msard.2021.103038
dc.identifier.uri https://repositorio.fleni.org.ar/xmlui/handle/123456789/597
dc.description.abstract As human and economic resources are limited, especially in Latin America (LATAM), it is important to identify research priorities to improve multiple sclerosis (MS) patients care in the region. The objective was to generate a multidisciplinary consensus on research priorities in MS for patients care in LATAM by involving healthcare professionals and MS patient associations. Methods consensus was reached through a four-step modified Delphi method designed to identify and rate research priorities in MS in LATAM. The process consisted of two qualitative assessments, a general ranking phase and a consensus meeting followed by a more detailed ranking phase Results a total of 62 participants (35 neurologists, 4 nurses, 12 kinesiologists, 7 neuropsychologists and 4 patient association members) developed the process. At the final ranking stage following the consensus meeting, each participant provided their final rankings, and the top priority research questions were outlined. 11 research priorities were identified focusing on healthcare access, costs of the disease, physical and cognitive evaluation and rehabilitation, quality of life, symptoms management, prognostic factors, the need of MS care units and patient's management in emergencies like COVID-19. Conclusion this work establishes MS research priorities in LATAM from multiple perspectives. To pursue the actions suggested could launch the drive to obtain information that will help us to better understand the disease in our region and, especially, to better care for affected patients. es_ES
dc.language.iso eng es_ES
dc.publisher Elsevier es_ES
dc.rights info:eu-repo/semantics/openAccess
dc.rights.uri https://creativecommons.org/licenses/by/2.5/ar/
dc.subject COVID-19 es_ES
dc.subject Latin America es_ES
dc.subject América Latina es_ES
dc.subject Multiple Sclerosis es_ES
dc.subject Esclerosis Múltiple es_ES
dc.subject Quality of Life es_ES
dc.subject Calidad de Vida es_ES
dc.title Research priorities in multiple sclerosis in Latin America: A multi-stakeholder call to action to improve patients care: Research priorities in MS in LATAM es_ES
dc.type info:eu-repo/semantics/article es_ES
dc.type info:eu-repo/semantics/publishedVersion
dc.description.fil Fil: Rojas, Juan Ignacio. Centro de Esclerosis Múltiple de Buenos Aires; Argentina.
dc.description.fil Fil: Carnero Contentti, Edgar. Hospital Alemán de Buenos Aires; Argentina.
dc.description.fil Fil: Abad, Patricio. Hospital Metropolitano de Quito; Ecuador.
dc.description.fil Fil: Aguayo, Adriana. Universidad de Guadalajara; México.
dc.description.fil Fil: Alonso, Ricardo. Hospital Ramos Mejía; Argentina.
dc.description.fil Fil: Bauer, Johana. Esclerosis Múltiple Argentina; Argentina.
dc.description.fil Fil: Becker, Jefferson. Pontifical Catholic University of Rio Grande do Sul (PUCRS); Brasil.
dc.description.fil Fil: Bustos, Andrea K. Fundación AlunCo; Argentina.
dc.description.fil Fil: Carcamo, Claudia A. Pontificia Universidad Católica de Chile; Chile.
dc.description.fil Fil: Carrá, Adriana. Hospital Británico Buenos Aires; Argentina.
dc.description.fil Fil: Correa Díaz, Edgar Patricio. Hospital de Especialidades Carlos Andrade Marín; Ecuador.
dc.description.fil Fil: Correale, Jorge. Fleni. Departamento de Neurología. Servicio de Neuroinmunología y Enfermedades Desmielinizantes; Argentina.
dc.description.fil Fil: Cristiano, Edgardo. Hospital Universitario CEMIC; Argentina.
dc.description.fil Fil: Diaz, Alejandro J. Instituto Guatemalteco de Seguridad Social; Guatemala.
dc.description.fil Fil: Fernandez Liguori, Nora. Hospital Universitario Sanatorio Guemes; Argentina.
dc.description.fil Fil: Flores, José. Instituto Nacional de Neurología y Neurocirugía; México.
dc.description.fil Fil: Fruns, Manuel. Clínica Las Condes; Chile.
dc.description.fil Fil: Ysrraelit, Maria Célica. Fleni. Departamento de Neurología. Servicio de Neuroinmunología y Enfermedades Desmielinizantes; Argentina.
dc.relation.ispartofVOLUME 53
dc.relation.ispartofPAGINATION 103038
dc.relation.ispartofCOUNTRY Países Bajos
dc.relation.ispartofCITY Amsterdam
dc.relation.ispartofTITLE Multiple sclerosis and related disorders
dc.relation.ispartofISBN 2211-0356
dc.type.snrd info:ar-repo/semantics/artículo es_ES


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