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Global Barriers to the Diagnosis of Multiple Sclerosis: Data From the Multiple Sclerosis International Federation Atlas of MS, Third Edition

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dc.contributor.author Solomon, Andrew J.
dc.contributor.author Marrie, Ruth Ann
dc.contributor.author Viswanathan, Shanthi
dc.contributor.author Correale, Jorge
dc.contributor.author Magyari, Melinda
dc.contributor.author Robertson, Neil P.
dc.contributor.author Saylor, Deanna R.
dc.contributor.author Kaye, Wendy
dc.contributor.author Rechtman, Lindsay
dc.contributor.author Bae, Eunchan
dc.contributor.author Shinohara, Russell
dc.contributor.author King, Rachel
dc.contributor.author Laurson-Doube, Joanna
dc.contributor.author Helme, Anne
dc.date.accessioned 2024-02-08T11:54:44Z
dc.date.available 2024-02-08T11:54:44Z
dc.date.issued 2023-06-15
dc.identifier.citation Solomon AJ, Marrie RA, Viswanathan S, Correale J, Magyari M, Robertson NP, Saylor DR, Kaye W, Rechtman L, Bae E, Shinohara R, King R, Laurson-Doube J, Helme A. Global Barriers to the Diagnosis of Multiple Sclerosis: Data From the Multiple Sclerosis International Federation Atlas of MS, Third Edition. Neurology. 2023 Aug 8;101(6):e624-e635. doi: 10.1212/WNL.0000000000207481 es_ES
dc.identifier.uri https://doi.org/10.1212/WNL.0000000000207481
dc.identifier.uri https://repositorio.fleni.org.ar/xmlui/handle/123456789/976
dc.description.abstract Background and objectives: Recent data suggest increasing global prevalence of multiple sclerosis (MS). Early diagnosis of MS reduces the burden of disability-adjusted life years and associated health care costs. Yet diagnostic delays persist in MS care and even within national health care systems with robust resources, comprehensive registries, and MS subspecialist referral networks. The global prevalence and characteristics of barriers to expedited MS diagnosis, particularly in resource-restricted regions, have not been extensively studied. Recent revisions to MS diagnostic criteria demonstrate potential to facilitate earlier diagnosis, but global implementation remains largely unknown. Methods: The Multiple Sclerosis International Federation third edition of the Atlas of MS was a survey that assessed the current global state of diagnosis including adoption of MS diagnostic criteria; barriers to diagnosis with respect to the patient, health care provider, and health system; and existence of national guidelines or national standards for speed of MS diagnosis. Results: Coordinators from 107 countries (representing approximately 82% of the world population), participated. Eighty-three percent reported at least 1 "major barrier" to early MS diagnosis. The most frequently reported barriers included the following: "lack of awareness of MS symptoms among general public" (68%), "lack of awareness of MS symptoms among health care professionals" (59%), and "lack of availability of health care professionals with knowledge to diagnose MS" (44%). One-third reported lack of "specialist medical equipment or diagnostic tests." Thirty-four percent reported the use of only 2017 McDonald criteria (McD-C) for diagnosis, and 79% reported 2017 McD-C as the "most commonly used criteria." Sixty-six percent reported at least 1 barrier to the adoption of 2017 McD-C, including "neurologists lack awareness or training" by 45%. There was no significant association between national guidelines pertaining to MS diagnosis or practice standards addressing the speed of diagnosis and presence of barriers to early MS diagnosis and implementation of 2017 McD-C. Discussion: This study finds pervasive consistent global barriers to early diagnosis of MS. While these barriers reflected a lack of resources in many countries, data also suggest that interventions designed to develop and implement accessible education and training can provide cost-effective opportunities to improve access to early MS diagnosis. es_ES
dc.language.iso eng es_ES
dc.publisher Lippincott Williams & Wilkins es_ES
dc.rights info:eu-repo/semantics/openAccess
dc.subject Delivery of Health Care es_ES
dc.subject Atención a la Salud es_ES
dc.subject Health Care Costs es_ES
dc.subject Costos de la Atención en Salud es_ES
dc.subject Health Personnel es_ES
dc.subject Personal de Salud es_ES
dc.subject Multiple Sclerosis es_ES
dc.subject Esclerosis Múltiple es_ES
dc.title Global Barriers to the Diagnosis of Multiple Sclerosis: Data From the Multiple Sclerosis International Federation Atlas of MS, Third Edition es_ES
dc.type info:eu-repo/semantics/article es_ES
dc.type info:eu-repo/semantics/publishedVersion
dc.description.fil Fil: Correale, Jorge. Fleni. Departamento de Neurología. Servicio de Neuroinmunología y Enfermedades Desmielinizantes; Argentina.
dc.relation.ispartofVOLUME 101
dc.relation.ispartofNUMBER 6
dc.relation.ispartofPAGINATION e624-e635
dc.relation.ispartofCOUNTRY Estados Unidos
dc.relation.ispartofCITY Hagerstown
dc.relation.ispartofTITLE Neurology
dc.relation.ispartofISSN 1526-632X
dc.type.snrd info:ar-repo/semantics/artículo es_ES

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